HB 107 – Sickle cell disease registry

HB 107 requires the state to create a centralized registry tracking all individuals diagnosed with sickle cell disease in Texas. While aimed at improving treatment and research, the bill mandates that hospitals and clinics report patient data, creating a new regulatory burden. The registry is expected to cost nearly $5 million in the first two years and add at least five new full-time government employees. It also sets a precedent for disease-specific registries that could lead to further government overreach and spending. Although privacy protections are mentioned, there is no robust enforcement mechanism for data security, leaving personal health information potentially vulnerable. This is not a core function of government and shifts focus away from empowering free-market solutions, patients, and reducing healthcare costs.